Post by Unega Uwohali Waya Adkins on Sept 16, 2007 15:50:12 GMT -6
My mother White Feather don't have time to post in this board, so I posted this Topic for her.
I don't understand her misspell words wrong or used abbreviates. I think she just very tired and can't think what to saying well.
She wrote to us:
GOD ANSWERS PRAYERS
Today we went to church for the first time since Terry became ill. He told ME, that he wanted to go. He took a shower and dressed himself. I made his breakfast, gave him his meds and then I flew to get myself ready. We made it to church with 10 minutes to spare. ha
Everyone was so happy to see him at church. One hour was all he could take though. We went straight home and he went right to bed exhausted. But it was a happy exhaustion. He slept for a while and got up. I made his lunch and gave him his meds. Now he is watching a little football. Oops, he just stuck his head in and said he is taking a nap now.
Last Thursday I took him to Dr. Joe Pozar, his PCP doctor. Dr. Joe was AMAZED when he saw him. He told Terry that many people do not make it from any kind of encephalitis (and stroke combined) and those that do, usually are left with very serious problems.
Terry has good days and bad days. Some days he will walk all around the house without the walker and some days he needs it. He is beginning to walk on the treadmill a little at a time.
He has short term memory and has a hard time with expressive speech. When he first gets up in the morning or from a nap, he does very well for a couple of hours, then if he has talked too much or gets tired, he uses the wrong words for different things. (eg. he will call a dish a pot, sorry it's hard for me to think of some of the things.) Some things he knows but the words come out wrong, like he called a screw driver a screw bar. But I thought that was pretty close.
I really need to get on with this. I have a lot to do.
Dr. Pozar said to not take him into public for 2 weeks, except he could go to church. Our church is small. His immune system is low at the moment.
There is one medicine we will take him off of when he finishes the present bottle. Sulcrafate. It coats the stomach.
Of course he cannot drive, But he will.
Friday, I took him to a Neurologist, Dr. J. Jabashir. I didn't care for him although Terry liked him okay. I thought he was just a little hurried. Anyway, he added two extra Keppras (seizure med) to his daily meds. He is already taking 2 of them at night. Now he will take 2 in the morning also. He also takes 6 Depakotes during the day for seizures.
These meds tire him out, but we think he will eventually get use to it. He will take Keppra the rest of his life.
This doctor talked and examined him, then admitted that this was really out of his field, but he had a very experienced colleague, a Harvard grad, a Neurologist and very up on this type of problem.
We are now waiting for the referral from USFHP and then we will go to Dr. William High in Clear Lake.
This Tuesday he will be evaluated at the therapy clinic. They will evaluate the short term memory, speech, etc. and physical therapy.
Then we start going 3 days a week and I will need to work with him on the days we don't go.
I have rescheduled 2 of my doctor appointments and have 4 or more capable friends to take turns staying with him while I go.
Okay. Now regarding visitors. Per Terry's words and I agree. He knows his limits and is adamant about laying down when he is tired. He usually can last about an hour and stretched it once to 1 1/2 hours. He fell asleep with people in the living room. He is embarrassed to tell anyone that he really needs to go rest. I keep telling him not to worry about that. It will get better. He is the important one right now.
For those in town, please visit, but please call before you come and I can tell you how he feels that day, and I will know if anyone else is scheduled to come. He is not up to everyday.
For those out of town, he said he is just not strong enough or ready mentally for anyone to stay here at the house. We have lovely, new and reasonably priced motels in Clear Lake and on the Freeway 6 miles down the road in Texas City. They are very nice. You could come to see him for a while and then go do something you might like to do and then come later and visit for a while again or the next morning.
It will not be like this forever. We both agreed on that. We will keep everyone updated on his progress. It is just right now, we are starting to get going on therapy, doctors, etc. etc. and build up strength.
Please make sure everyone is well when you come. If he even catches a cold, it could be very very serious for him.
Okay. Boy, I said too much I'm sure.
We love you all and we want to see all of you. It is just a slow process, but Dr. Pozar and I think he is doing remarkable.
Thank you for all your prayers and all the help. We have such wonderful families and friends.
Terry and Bev (White Feather)
I don't understand her misspell words wrong or used abbreviates. I think she just very tired and can't think what to saying well.
She wrote to us:
GOD ANSWERS PRAYERS
Today we went to church for the first time since Terry became ill. He told ME, that he wanted to go. He took a shower and dressed himself. I made his breakfast, gave him his meds and then I flew to get myself ready. We made it to church with 10 minutes to spare. ha
Everyone was so happy to see him at church. One hour was all he could take though. We went straight home and he went right to bed exhausted. But it was a happy exhaustion. He slept for a while and got up. I made his lunch and gave him his meds. Now he is watching a little football. Oops, he just stuck his head in and said he is taking a nap now.
Last Thursday I took him to Dr. Joe Pozar, his PCP doctor. Dr. Joe was AMAZED when he saw him. He told Terry that many people do not make it from any kind of encephalitis (and stroke combined) and those that do, usually are left with very serious problems.
Terry has good days and bad days. Some days he will walk all around the house without the walker and some days he needs it. He is beginning to walk on the treadmill a little at a time.
He has short term memory and has a hard time with expressive speech. When he first gets up in the morning or from a nap, he does very well for a couple of hours, then if he has talked too much or gets tired, he uses the wrong words for different things. (eg. he will call a dish a pot, sorry it's hard for me to think of some of the things.) Some things he knows but the words come out wrong, like he called a screw driver a screw bar. But I thought that was pretty close.
I really need to get on with this. I have a lot to do.
Dr. Pozar said to not take him into public for 2 weeks, except he could go to church. Our church is small. His immune system is low at the moment.
There is one medicine we will take him off of when he finishes the present bottle. Sulcrafate. It coats the stomach.
Of course he cannot drive, But he will.
Friday, I took him to a Neurologist, Dr. J. Jabashir. I didn't care for him although Terry liked him okay. I thought he was just a little hurried. Anyway, he added two extra Keppras (seizure med) to his daily meds. He is already taking 2 of them at night. Now he will take 2 in the morning also. He also takes 6 Depakotes during the day for seizures.
These meds tire him out, but we think he will eventually get use to it. He will take Keppra the rest of his life.
This doctor talked and examined him, then admitted that this was really out of his field, but he had a very experienced colleague, a Harvard grad, a Neurologist and very up on this type of problem.
We are now waiting for the referral from USFHP and then we will go to Dr. William High in Clear Lake.
This Tuesday he will be evaluated at the therapy clinic. They will evaluate the short term memory, speech, etc. and physical therapy.
Then we start going 3 days a week and I will need to work with him on the days we don't go.
I have rescheduled 2 of my doctor appointments and have 4 or more capable friends to take turns staying with him while I go.
Okay. Now regarding visitors. Per Terry's words and I agree. He knows his limits and is adamant about laying down when he is tired. He usually can last about an hour and stretched it once to 1 1/2 hours. He fell asleep with people in the living room. He is embarrassed to tell anyone that he really needs to go rest. I keep telling him not to worry about that. It will get better. He is the important one right now.
For those in town, please visit, but please call before you come and I can tell you how he feels that day, and I will know if anyone else is scheduled to come. He is not up to everyday.
For those out of town, he said he is just not strong enough or ready mentally for anyone to stay here at the house. We have lovely, new and reasonably priced motels in Clear Lake and on the Freeway 6 miles down the road in Texas City. They are very nice. You could come to see him for a while and then go do something you might like to do and then come later and visit for a while again or the next morning.
It will not be like this forever. We both agreed on that. We will keep everyone updated on his progress. It is just right now, we are starting to get going on therapy, doctors, etc. etc. and build up strength.
Please make sure everyone is well when you come. If he even catches a cold, it could be very very serious for him.
Okay. Boy, I said too much I'm sure.
We love you all and we want to see all of you. It is just a slow process, but Dr. Pozar and I think he is doing remarkable.
Thank you for all your prayers and all the help. We have such wonderful families and friends.
Terry and Bev (White Feather)